Videos, Interviews, and More
Claiming Full Citizenship:
Self-Determination – Personalization – Individualized Funding
Video interviews by Brian Salisbury, Rights Based Social Policy
Presenters and participants who attended the Claiming Full Citizenship, an international conference held in Vancouver, BC in 2015, graciously gave their time to be interviewed about a variety of topics that impact the effectiveness of human service systems to enable the people they support to meet their needs and purse their citizenship aspirations.
Hear from leaders (both conference presenters and participants) across Canada and around the world from the United Kingdom, New Zealand, Australia, and the United States, speak on topics that help people living with disabilities live their life as a full citizen through numerous short video interviews:
- Independent Facilitation and Planning
- Individualized Funding
- Individual and Family Support
- Supported Decision Making
Rights Based Social Policy (RBSP) is committed to transforming human services so people with intellectual, physical and psycho-social disabilities and seniors can live as FULL citizens. RBSP works in partnership with the Canadian Institute for Inclusion and Citizenship to support full inclusion and citizenship for all citizens.
Citizenship/Self-Determination in Canada Video (and more)
In this video, John Lord discusses Canada’s existing policy and practice framework for individualized funding for people with disabilities and highlights pockets of excellence that show promise for the future. This video of John speaking at an international conference in Vancouver, British Columbia is located on the website called, A New Story – Creating Change in Human Services and Communities, on the Archive for Individualized Funding webpage.
MORE: Also found on this web page, are six publications about individualized funding and citizenship to which John Lord helped facilitate and research the work and also wrote the final reports/articles. Each of these publications is worth exploring. Some are also found on the Individualized Funding Coalition for Ontario website. Click the link below to view the video and documents:
Inspiring Video Stories – Families for a Secure Future
This series of video stories are located together on the Stories page of the Families for a Secure Future website. Families for a Secure Future is dedicated to serving adults with developmental disabilities and supporting them to become more engaged in directing their lives, making choices and taking up full citizenship in the community.
Be inspired as you hear people and families share what has happened as they embraced their life goals and passions with the support of an independent facilitator, the relationships in their life and individualized funding. Video stories can be found at this link:
Research, Reports, and More
Building a Full Life + a Home of One’s Own in the Community
Reforming developmental services in Ontario to build choice and independence
By Community Living Ontario (CLO), May 2021
“Building a Full Life + a Home of One’s Own in the Community is a new report from Community Living Ontario that offers recommendations on individualized funding, housing, and community inclusion for people who have an intellectual disability. The report provides detailed guidance and insights, and will hopefully serve as a platform for meaningful discussion as the province moves forward with developmental service reform.” (Excerpt from the Community Living Ontario Website.)
Those of us who have been championing individualized funding approaches since the 90’s (and earlier) as part of systems change work will find this paper intriguing and also somewhat refreshing. Framed as a discussion paper, it includes a plethora of information: statistics, some history, a recognition that Ontario has fallen behind on direct funding, highlights about progressive approaches in other countries, the use of research and reports, and more. It has been well prepared and presented. Although likely written for those who provide services and who are interested in changing the way they do business, it will be helpful to others.
We understand this paper is meant to spark discussion in Ontario. Where some may say they can see things missing, or would like further conversation about certain aspects — we say go ahead have the conversation. We encourage ‘you’ to bring your thoughts forward because the invitation to be part of meaningful discussion is there.
The good thing about this paper is that it offers a strong narrative for change, offering context, content and ideas. The hope is that there would be some sense of expediency for movement forward, especially for those who are outside the system. To read the full report . . .
Directly-Funded Programs in Canada
By Christine Kelly, Lisette Dansereau, Kevin Balkaran, Elizabeth Tingey, Mary Jean Hande, Katie Aubrecht, and Allison Williams
The following has been taken directly from the document: This report documents Directly-Funded care programs in Canada. Directly-funded (DF) care refers to when caregivers or individuals are given funds or budgeted hours to arrange their own home care services. DF programs serve adults with physical disabilities and cognitive disabilities (including dementia), adults and children with intellectual disabilities, and older adults who require assistance with the activities of daily living . . . .
Demand for home care is increasing throughout Canada and elsewhere due to a convergence of factors. Most notably, our population is aging, people are living longer, and sometimes age brings increased needs for support with the activities of daily living. We also have a growing number of individuals living with disabilities and chronic care needs (Statistics Canada, 2018). At the same time, there is a cultural and health shift away from residential care, stemming back to deinstitutionalization movements led by people living with intellectual, psychosocial, and physical disabilities. When asked, the vast majority of people would prefer to stay in their own homes as long as possible if care needs were to arise (Peterson & Quinn, 2017).
Citation: Kelly, C., Dansereau, L., Balkaran, K., Tingey, E., Aubrecht, K., Hande, M.J., & Williams, A. (2020). Directly-Funded Care Programs in Canada. Centre on Aging, University of Manitoba, Winnipeg, Manitoba. https://doi.org/10.34991/847b-5q61
The Role of Independent Facilitation as a Crucial Safeguard for Individuals and Families, Version 2, 2017
By the Individualized Funding Coalition for Ontario
Excerpted from a previous report submitted to the Ministry of Community and Social Services called Report on the Direction of Independent Facilitation and Person Directed Planning in Ontario, September, 2012. This ‘excerpt’ Version 2, 2017 was re-submitted to the Ministry of Community and Social Services in the year 2017.
Read this publication to learn what many independent facilitators have come to understand having supported people and families over many years; some since the pilot projects of the late 90’s. The crucial safeguards outlined in this document were developed from and based on what people and families have expressed and experienced themselves — what they have shared at gatherings hosted by the Individualized Funding Coalition from Ontario.
Gatherings were commonly held by IFCO to hear directly from people and families, many of who were using various forms of individualized funding and who had the support of a facilitator. In the year 2017, the Individualized Funding Coalition for Ontario, and partners, felt the timing was right to share this important information again.
To read or download the document use this link: The Role of Independent Facilitation as a Crucial Safeguard for Individuals and Families, Version 2, 2017
To view other relevant resources, reports, research, etc. by the Individualized Funding Coalition go to the following page on this website: https://individualizedfunding.ca/resources/
A Framework for Effective Implementation
By Marsha Dozar, Don Gallant, Judy Hannah, Emily Hurd, Jason Newberry, Ken Pike, and Brian Salisbury
This is a research report prepared for the Northern Ontario, Manitoba, and Saskatchewan Regional Node of the Social Economy Suite. At the time of publication individualized Funding already existed in six Canadian provinces, as well as in the United States and Australia.
The National Individualized Funding Discussion Group has developed this document to support the understanding and development of IF. Individualized Funding recognizes that funding, services and supports should not define the individual’s needs, but should respond to, and be built around them. Further, it recognizes that these needs must be identified by the individual, and not by the professionals around them. Choice and greater control by individuals over the supports and services that are a part of their lives are key aspects of Individualized Funding.
This paper was written to help families, government and people with disabilities understand what Individualized Funding is, and what we need to do to make it work.
“A Home That’s Right for Me”
Valuing Choice, Evolving Individualized Residential Options
Summary Report of Policy Forums Sponsored by the Ministry of Community and Social Services – Appendices, Prepared by Jenny Carver & Associates
A series of forums were held across the Province of Ontario. Individuals, families, and agencies were asked to provide stories about individualized residential situations so they could be shared in this document to give other families and agencies a sense of what is possible. It is the author’s hope that the stories included will help people see what innovative options of “home” have evolved so they can think openly and broadly, rather than just from their experience with options that currently exist.
Individuals, families, agencies, independent planners, and community members have developed and supported many unique, innovative, and highly personal arrangements in creating ‘a home that’s right’ for people. The situations include separate apartments in the family home, owning and sharing a house with room-mates, having a home to themselves as owner, or supporting the person in a market rental or subsidized apartment or cooperative unit. Such examples are shared within this document.
Click here to learn more about where things were at in Ontario in 2009.
Self Managed Care Programs in Canada: A Report to Health Canada, June 2006
By: Karen Spalding, RN, PhD Associate Professor, School of Nursing, Faculty of Community Services, Ryerson University; Jillian R. Watkins, BASc, MSc Candidate, Research Assistant; A. Paul Williams, PhD, Professor, Department of Health Policy Management and Evaluation, Faculty of Medicine, University of Toronto.
This report was prepared for the Home and Continuing Care Unit of the Health Care Policy Directorate, Health Canada. It describes publicly funded, self managed home care programs at federal, provincial and territorial levels across Canada.
The Individualized Funding Coalition for Ontario encourages you to take a look at this document which outlines varies self-managed care programs in Canada between the years 2000 and 2005. See what the findings were, and what recommendations were made for exploring this type of support into the future. Ask yourself: Where were ‘things’ across this country in the year 2006 with regard to self-managed care/funding programs? Where are things now in the year 2021?
Click here to read: Self-Managed Care Programs in Canada: A Report to Health Canada
Citation: Spalding, K. L., Williams, A. P., & Watkins, J. R. (2006). Self managed care programs in Canada: A report to Health Canada. Health Care Policy Directorate, Health Canada.